ToPCaP

Irish Prostate Cancer Outcomes Research (IPCOR)

Irish Prostate Cancer Outcomes Research (IPCOR)

The Irish Prostate Cancer Outcomes Research (IPCOR) study is establishing a national registry of men who have been newly diagnosed with prostate cancer in Ireland. The study began in February 2014 and is funded by Movember, in partnership with the Irish Cancer Society. This research is being carried out by Molecular Medicine Ireland (MMI), the National Cancer Registry Ireland (NCRI) and the Clinical Research Facility in Galway (CRFG) and is guided by a steering committee consisting of Urologists, Radiation Oncologists, Medical Oncologists, Pathologists, Epidemiologists and Patient Representatives. This longitudinal population-based study aims to collect both high quality clinical information and patient reported outcomes from men who have been diagnosed with and treated for prostate cancer in Ireland. Analysis of this data will allow us to determine clinical outcomes of prostate cancer patients and to assess their experiences of care, their physical and psychological wellbeing and their quality of life throughout their cancer journey. This comprehensive data collected by the registry will be used to provide evidence-based data and recommendations to hospitals and decision makers to support improvements in prostate cancer care.